The guide is entitled Working with patients and patient organisations - a sourcebook for industry and covers six topics: principles and agreements; defining a patient organisation, patient or patient advocate; events and meetings; research and development; product launches; and payments.
Jill Pearcy, Director of Code Engagement at the ABPI, who authored the report, commented: “The industry is here to develop medicines that address unmet medical needs and it is clear that to understand that need, you must learn from the people living with the condition. We have worked with patient organisations to produce a sourcebook which includes practical guidance, tips and tools, to support pharmaceutical companies collaborate with patients and patient organisations. It might sound obvious, but if you are not working with patient interest at the heart of what you do you can’t be truly patient-centric. As an industry we are committed to this."